When NYU Hospital told me I had Lyme, the CDC website and a lot of other official statements certainly did not alert me to what a true shit show I was now starring in. Neither did my infectious disease specialist.
I am one of the lucky ones. I have a name for what has ruined my entire life the past few years. I have a CDC positive diagnosis. After loads of treatment, I think I am as well as can be hoped for now? I think I am ready to be functional, kind of like a normal person.
Yet, even in the Lyme ridden North East, my treatment and recovery have been filled with a world of people who don’t understand what I am dealing with.
My heart breaks for every person who is now suffering like I did, but are still undiagnosed.
Many people get no sympathy or help from their workplace, or spouse, family or friends. It gets hard for these people to tell themselves every day, “I am not crazy something is really wrong.”
So I’m just saying, you are not crazy. Easy to say, easy to forget.